https://www.imosver.com/en/libros/mar-bajo-la-sombra-de-la-ataxia-00104085990010408599Mar bajo la sombra de la ataxia22.46Mar bajo la sombra de la Ataxia es una autobiograf¡a breve que narra la motivadora historia de Mar, una mujer afectada por una extraña enfermedad que se manifestó desde su infancia. Ella se rehúsa a phttps://static.imosver.com/imagenes_small/9781506/978150652027.jpgLibrosLibros/BIOGRAFIASEn stockIBD PODIPRINT000https://static.imosver.com/imagenes_small/9781506/978150652027.jpg23.6451.182017/08/259781506520278Martínez, Marlen AguilarLibrosaño_2017idioma_SpanishCautor_Martínez, Marlen Aguilarsaga_.
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Mar bajo la sombra de la
Martínez Marlen Aguilar
IBD PODIPRINT
BIOGRAFIAS
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Mar bajo la sombra de la Ataxia es una autobiograf¡a breve que narra la motivadora historia de Mar, una mujer afectada por una extraña enfermedad que se manifestó desde su infancia. Ella se rehúsa a permanecer en esas condiciones y a pesar de las circunstancias que limitan su condición f¡sica, logra cursar su educación primaria, secundaria y bachillerato.A través de sus palabras, Mar plantea cómo el raro padecimiento arrastra con su condición de salud, con su habilidad de caminar, con su independencia, con sus sueños y metas.áSu historia nos muestra cómo su condición se va degenerando hasta encontrarse al borde áde un coma diabético y a punto de perder la vida.La ignorancia del padecimiento que le aquejaba, su precaria situación económica, el ego¡smo y la incomprensión de la gente, se añaden a todas las dif¡ciles situaciones que Mar se vio obligada a afrontar y que, durante los primeros años, le ocasionaron un desgaste f¡sico y emocional.áEl relato muestra su lucha y desesperación por conocer el trastorno que estaba deteriorando su estado f¡sico. Hasta que por fin recibió el diagnóstico exacto de la enfermedad: ataxia de Friedreich. Le informan que es un padecimiento neurodegenerativo, hereditario y que no hay cura.áEn suma, Mar bajo la sombra de la ataxia es un texto de sencilla lectura que relata cómo esta enfermedad forjó la personalidad y carácter de Mar. Su lectura marca a plenitud momentos dif¡ciles de nostalgia y tiene como finalidad sensibilizar a la sociedad en la existencia de este tipo de enfermedades raras, en las que los pacientes frecuentemente son confundidos con adictos o se les teme por la falsa idea de que podr¡an portar un mal contagioso.