https://www.imosver.com/en/libros/enfermedades-raras-00104991320010499132ENFERMEDADES RARAS7.13Una enfermedad rara puede afectar a solo unos pocos pacientes, y otras afectan hasta 245.000. Existen más de 6.000 tipos. En la UE las enfermedades raras afectan a 30 millones de ciudadanos. El 80% dehttps://static.serlogal.com/imagenes_small/9788491/978849124028.jpgLibrosLibros/MEDICINA Y SALUDSin stock temporalmenteFORMACION ALCALA000https://static.serlogal.com/imagenes_small/9788491/978849124028.jpg00104990797.550.372016/02/019788491240280FERNÁNDEZ PÉREZ ELENALibrosaño_2016idioma_SpanishCformato_Libroautor_FERNÁNDEZ PÉREZ ELENAsaga_GPS
Artículo
ENFERMEDADES RARAS
FERNÁNDEZ PÉREZ ELENA
FORMACION ALCALA
MEDICINA Y SALUD
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Una enfermedad rara puede afectar a solo unos pocos pacientes, y otras afectan hasta 245.000. Existen más de 6.000 tipos. En la UE las enfermedades raras afectan a 30 millones de ciudadanos. El 80% de las enfermedades raras o huérfanas son de origen genético y muchas veces son crónicas y ponen en riesgo la vida. En este escenario es importante disponer de organizaciones y portales online que proporcionan una amplia gama de información a pacientes, familias y profesionales en este campo.